Image courtesy of Carrie Hitchcock on behalf of Dhek Bhal
We know that minority ethnic communities are marginalised in healthcare and research. This means they are under-represented in :
deciding what should be researched and how
taking part in trials of new treatments
sharing research results
We want to create a practical resource, in the form of a video, produced with members of a Bristol community group. We hope that this will help address some of the barriers to research involvement faced by racially marginalised communities.
Based on our discussions with community leaders in Bristol, we know that community members prefer visual ways of sharing information. This is because highly visual ways of sharing information are more accessible than text-based communication. Video allows for preferred languages to be used. With this in mind, we plan to run relaxed sessions where we help members of Dhek Bhal, a local community organisation, explore film as a medium. We will do this with the support of the University of Bristol Department of Film and TV.
We hope that the filmmaking process will help bridge the gaps between patient and public involvement and engagement (PPIE) and communities that remain marginalised in health research. We will also try to understand how to involve people who are mainly housebound and receiving care in their own homes. These members of the community are likely to be the most marginalised due to disability, digital exclusion and social isolation.
The aim of this project is to co-create a short film with the older South Asian community in Bristol. Our film will show the importance of PPIE and show how communities and researchers can work together to make health research better. We will record people in their preferred language and produce (English) subtitles with the help of community leaders.